|Posted on April 29, 2010 at 10:04 PM|
Hello and Happy Spring to everyone! We wanted to update everyone on Kerri’s progress since coming home just before Easter. It will be 4 weeks tomorrow since we left Monterrey and it has been a busy time. Much of the time has been spent having Kerri rest to recover, as resuming activities slowly is what is recommended. However, there have also been many appointments to keep up with. She has gone through 2 rounds of low dose ketamine infusions in Philadelphia. These are recommended as follow up treatments for the coma and are done 2 days at a time on an out-patient basis. Kerri also had an office visit with her wonderful neurologist, Dr. Schwartzman, here in Philly. He was very pleased with how well she has responded to the ketamine coma. He is sending her to the chief orthopedist at Hahnemann hospital to have her left knee checked, the site that still is giving her problems. Much of the total body nerve pain is gone!
Last week, Kerri started pool physical therapy which is recommended for the next 3 months (3 times a week). Experiencing movement in the therapeutic heated pool will allow her to start to bear weight on her legs again gradually without putting too much pressure on her joints. She is now able to walk for short distances on the first floor of our house without any help. This is a huge milestone, considering before we went to Mexico she was in the wheelchair almost all of the time and needed a great deal of help to take a few steps. She is starting to sleep better (insomnia was a problem for awhile after coming home) and has regained some of the hearing loss she had sustained from RSD prior to the coma. The vision problems she was experiencing from post coma medications are also improving.
We are planning to travel back to the RSD Research Institute in Tampa, Florida next month for Kerri’s follow up appointment with Dr. Kirkpatrick. Part of participating in the Ketamine Coma Research study entails visits there at 1 month, 6 months, 1 year and 2 years after the coma for follow up studies. In addition to undergoing the coma procedure as a chance to put Kerri’s RSD into remission, it was also part of an opportunity to help the medical community (and all of us!) learn more about RSD, and hopefully lead to a better understanding, and eventual cure, for this life altering condition.
We will never forget the outstanding medical care and compassion given to Kerri and our family in Monterrey by Dr. Cantu and the staff at Hospital San José. He is a brilliant physician and a wonderful human being! We are so happy to be home and are cherishing many of the smaller things in life that often get taken for granted. This past week Kerri, Erin and I were sitting on our back patio throwing the ball for Hershey, our “bull in a china shop” chocolate lab. It was the first time she felt up to sitting outdoors, and as we were all laughing at Hershey's antics, I was reminded how very much we have to be thankful for. The greatest thing to see and hear these past few weeks has been Kerri's smile and her laughter. Thank you for Karing4Kerri!
Kathy, Mark, Kerri and Erin