|Posted on August 4, 2011 at 1:37 AM|
The last few days have felt a bit like a whirlwind, but so much good has come. We spent our first night back at the hotel Sunday night, but when Kerri seemed very sick on Monday we called Dr. Cantu. It turns out one of the medications she was taking to control the pain from surgery and RSD can make you feel like you have the flu. He suggested stopping that one and within a few hours she really started to bounce back. She started smiling again and was able to eat more than just a bite or two of soft foods. Mark and Erin enjoyed one more terrific visit with Jessica and Sarah while Kerri rested up to be able to make the journey home on Tuesday.
Dr. Cantu visited Kerri at the hotel on Tuesday morning before we left for the airport. He got quite the surprise when he saw her, amazed at how good she looked. The trip was long but she was quite a trooper and made it through the day. We arrived home at midnight and were greeted by a very happy pooch, eager to catch up on some fetch and cuddles. Thanks to Kristin he had a great time while we were gone. He opted to snuggle on Erin’s fuzzy rug to be close to all of us to go to sleep last night.
We had an interesting experience flying from Atlanta to Philly. Because of Kerri needing her wheelchair we are usually some of the first ones to get onto a plane, but the last ones off. As we were getting on a woman sat down 2 rows ahead of us with pizza. Another woman coming down the aisle saw it and mentioned that she would like some, so the woman gave her the pizza. We commented to ourselves what a nice thing that was for her to do.
After the flight, we learned from the flight attendant that the “random act of kindness” woman was Patti Labelle! The flight attendant didn’t know she was on the flight. It was one of the workers in the jet way that commented to the women as she got off the plane that she looked just like Patti Labelle, to which the woman replied “I am Patti”. Erin has decided that from now on if she flies, she should probably take everyone’s picture in case someone is famous! (By the way we have neglected to mention that on Saturday afternoon, Erin was treated to some iced coffee at the coffee shop in the hospital by Dr. Cantu and Dr. Luis. They not only treated Kerri better than we could have ever hoped for, but made Erin feel quite special too!)
Kerri will be examined by our dentist, Dr. Wright, tomorrow to make sure everything is healing well. In 2 weeks she will start another round of low dose intravenous infusions in Philadelphia with Dr. Schwartzman. After surgery, these treatments are needed again more frequently to keep the total body RSD symptoms at bay. We are very fortunate that everything has gone so well.
I looked up some of the lyrics for Patti Labelle’s songs today. This particular chorus reminded me how blessed we are to have all of you – our family, friends, doctors, and very special fellow RSD patients and families. Please keep them all in your prayers.
Hold on to me and we’ll be stronger
Together, stronger forever
Gotta have a little faith
To help us see things through
(This I know is true)
Sunset from the flight home
Thank you! Kathy, Mark, Kerri and Erin